STORIES

Stories2018-07-07T15:15:20+00:00

LIVING WITH EPILEPSY

When Fred Kiserem first convulsed  2012 while at work in Basra, Iraq, he did not think that he would later be diagnosed with epilepsy, a chronic illness that causes unprovoked, recurrent seizures. He did not visit the hospital, neither did he tell his employer in order to secure his job. The seizure attacked again after one month, but luckily it was around the time Kiserem

MICHELLE’S STORY SEIZING A CURE

“I still remember the first time Michelle had a seizure,” said Eunice Cole, Michelle Hernandez’s mother, recalling more than 30 years earlier. “I was scared to death. She was just 11-months-old. I remember when she had another seizure…putting her in my lap and driving to the emergency room.” Cole was told her daughter was having febrile seizures, which are convulsions that can happen during

AN ADVOCATE FOR THOSE BATTLING EPILEPSY

I was diagnosed at the age of two with epilepsy due to a traumatic brain injury. I spent my childhood being over medicated on medicine, not having my seizures under control. I dealt with many of the negative side effects which resulted in me becoming suicidal. Once I reached early adulthood, I made up my mind I was going to become seizure

CARER’S EXPERIENCE OF LOOKING AFTER A PERSON WITH EPILEPSY

My daughter had her first seizure just after her 11th birthday in July, luckily I was a trained first aider and knew what to do. I called an ambulance and at Heartlands hospital they diagnosed her as having a fibiral convulsion due to having a cold. I questioned this due to the fact that she hadn’t had a cold. My daughter then another seizure

MY LIFE EXPERIENCE AS AN EPILEPTIC

I remember the day very well when I had my first epileptic seizure at 13 years of age. I was out with my friends at a Musical Youth concert back in the early 1980’s. I returned home and went to sleep after an exhausting and exciting day.  I woke up and did not feel well, I went downstairs and my body started twitching, I

WHAT IT REALLY FEELS LIKE!

What it feels like…to have a Child with Epilepsy I really knew nothing of epilepsy prior to having my son Lewis 18 years ago. Having a child with a serious form of epilepsy which is uncontrolled is one of the most ambiguous neurological illnesses to deal with. You feel helpless. You see your child suffering every day and you cannot take it

HELP CHANGE LIVES TODAY

Few people are actually willing to step up and talk about Epilepsy. We need to make the world aware of the impact Epilepsy has on so many and find a cure. Without a cure, there are far too many people who will never have relief from seizures.

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