Caleb is an eight year old boy who suffers with so many seizures each day that doctors have said he is at high risk of SUDEP, his parents made a plea to help to prolong his life. He was a perfectly normal little boy living a very normal life until he began having seizures overnight on August 2,2019.
Caleb was invited to the US where he was diagnosed with focal cortical dysplasia – a type of epilepsy that occurs in the frontal lobe following an abnormality in the brain. According to medical experts it is the most common reason for drug-resistant epilepsy. Caleb remained in hospital in the US for three weeks while he underwent two operations to remove damaged brain tissue.
He needed to have further surgery so his parents started a go fund me and tried desperately to raise the funds that Caleb needed for his surgery.
Like a Christmas miracle on the 14th of December 2023 they reached their goal and Caleb is getting his surgery in January! There is still a long path to take for Caleb and his family but they are hopeful that this brain surgery will help Caleb!
Caleb_orion_2015 is the instagram handle for the account his parents run
