After 9 months of tests including sleep deprivation test. It was incredibly hard to keep an 11yr old awake and the moodiness and nastiness that went with that test was not something I would wish on my worst enemy. My daughter was finally diagnosed with Primary Generalised epilepsy and unfortunately for my daughter she gets no warning signs.
My daughter has absences, myoclonic seizures, tonic clonic seizures and Chiara 1 malfunction – which is a blockage in her neck caused by the seizures she also has a blockage in the middle of her back.
The medications that my daughter has been prescribed have all had severe side effects, including extreme weight loss, memory loss, stomach cramps.