The Voice for Epilepsy was founded by Kasam Parkar after he contracted the condition when he was 23 years old. Due to the severity of his seizures, he faced a variety of health problems including numerous hospital stays, memory loss and serious injuries.
His epilepsy is now under control through medication and he decided to found The Voice for Epilepsy to help support others like him who are struggling with the condition. He was inspired by the realisation that many people are unaware of the condition and how common it is.
Epilepsy is the most common serious neurological disorder with 1 in 100 people with the condition in the UK. Epilepsy can cause severe seizures which occur when bursts of electrical activity in the brain cause disturbances in the way cells communicate with each other. These can be dangerous as seizures can lead to falls and injuries.
Due to the stigma around the condition, many are unaware of its prevalence. Part of the Voice for Epilepsy’s mission is to raise awareness around the condition while challenging stigma to ensure that those with the condition are treated more compassionately and humanely.