My name is Kasam Parkar and I am a 49-year-old living with Epilepsy. I suffered my first seizure at the age of 23 and went undiagnosed in hospital for nearly 2 weeks. Normal life now consists of hospital visits, ambulance rides, recovery from injuries – broken nose, fractured shoulder, cuts forehead, loss of memory for over 5 years.
I have also felt distanced from the life I formerly enjoyed. After many years, new hospitals, new doctors, new medications, altering life habits and an overwhelming amount of support from my family and close friends, my seizures are currently controlled by medication, my seizures can be erratic and occasions I have suffer clusters which exhorts me for the rest of the day.
I feel the need for advocacy for Epilepsy hence I’ve decided to start this epilepsy charity. Many people are unaware of Epilepsy and how many people it effects. Additionally, because of the stigma so often attached to it, many people living with Epilepsy try there hardest to hide their condition. Few people are actually willing to step up and talk about Epilepsy. The Voice for Epilepsy’s mission is to spread awareness and be an advocate for those who do not have a voice or are afraid to speak out. We need to make the world aware of the impact Epilepsy has on so many and find a cure. Without a cure, there are far too many people who will never have relief from seizures.