Epilepsy Stories

Real epilepsy stories, shared by real people

Below are the epilepsy stories very kindly submitted to our website and our social media pages by people living with the condition and the families and friends caring for them.

Have your own epilepsy stories to share?

Epilepsy is the fourth most common, serious neurological condition in the world but it impacts each person’s life in a unique and individual way. By sharing your story, you are helping our mission of supporting epilepsy awareness!

 Scroll below to submit a post. We will add your epilepsy story on our website and you might be featured on our social media pages as well!

Cassidy Megan founder of Purple Day - read her story

A Mother’s view of Epilepsy

Jackson Kissel Epilepsy Story Hi, I’m Chris Kissel and this is my son's story Here is a story from my heart.My son Jackson had his first clonic tonic seizure at age 17. Until this time we had no idea he had epilepsy.As a mother, my thoughts and actions drove me to discover why this was happening. As all of you who suffer

My Epilepsy Life Story

Hi, I’m Addison Taylor and this is my epilepsy life story. I have had both Absence Seizures and Grand Mal Seizures for 13 years, When I was 7 years old and in the the 2nd grade I was playing with my friend in the rain one Thursday afternoon before my dad was going to take us to Yogurt Land I suddenly had

My Seizure Experience

Hi! My name is Rebecca Stusser; this is my seizure experience I was an infant when I had my first seizure. I was rushed to the ER, blood tests were taken and a heavy-duty antibiotic was given. I was diagnosed with Meningococcal Meningitis. At 10 months, I had another fever and illness which resulted in an hour-long febrile seizure. My 3rd fever illness

My Epilepsy Journey – Michelle Hackett

Hi! My name is Michelle and I want to share my epilepsy journey story. I have suffered with epilepsy for almost 21 years. I have front left temporal lobe epilepsy. I am currently taking several epilepsy medications a day. My epilepsy has affected my family. Along with my 2 children I lived with my parents until I met my husband 11 years


EpilepGermany -  Sven Michael Story My name is Sven, I'm 30 years old and I'm from Germany. My birth was a real adventure. I was born 6 weeks earlier, had brain hemorrhage, and was deaf. I learned to walk when I was 2 years old, and at 3,  I could already swim. After years of medical treatment, mostly in hospitals, I

Isabella Stefanoski Epilepsy Story

I'm Bella, this is my Epilepsy Story Hi there ! I got diagnosed with absent seizures at the age of 6, then had my first grand mal seizure when I was 17. I had a bit of an incident late April last year (2019), where I had a grand mal seizure and collapsed on the ground whilst I was curling my hair.

Nancy Young Story

Hi! I'm Nancy Young, this is my story. I was in working whilst studying in college. I was in the ER as an intermediate level EMT and had focuses in trauma and orthopedics. I also did some triage as well. I was three weeks away from graduation. On December 2, 2002, I left work to go home for lunch then go to

My Life with Epilepsy

I'm Jason Hughes epilepsy advocate, this is my story My life with epilepsy began when I was diagnosed at age 17, after an accident at work. I was working on a scaffolding which was 35ft up. The scaffolding collapsed with me on it. This happened 28 years ago. I suffered a head injury. It was a very strange sensation, all I remember

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    Few people are actually willing to step up and talk about Epilepsy. We need to make the world aware of the impact Epilepsy has on so many and find a cure. Without a cure, there are far too many people who will never have relief from seizures.

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