Epilepsy Stories

Real epilepsy stories, shared by real people

Below are the epilepsy stories very kindly submitted to our website and our social media pages by people living with the condition and the families and friends caring for them.

Have your own epilepsy stories to share?

Epilepsy is the fourth most common, serious neurological condition in the world but it impacts each person’s life in a unique and individual way. By sharing your story, you are helping our mission of supporting epilepsy awareness!

 Scroll below to submit a post. We will add your epilepsy story on our website and you might be featured on our social media pages as well!

Cassidy Megan founder of Purple Day - read her story

In My Right Mind

I had complex partial and grand mal seizures in my childhood and in my young adult years. I had many days when I would have several seizures in one day and would need to sleep after having a seizure. The seizure medications that I took never completely controlled my seizures. I had learning difficulties as a result of having epilepsy and taking up

A Mother’s Constant Worry

Ava's Story When Ava was 4 she suffered with a febrile convulsion very out of the blue and was told it very common in young children, however over the next few months she experienced a lot more, we still got told they were febrile convulsions. It was only when she had 8 seizures within a few hours of being in hospital that the

My Epilepsy Story

Hi my name is Jonathan I am from South Wales UK and I live at home with my mother, my parents divorced when I was aged 2 and I have a half sister on my father's side, when my parents divorced my grandparents helped my mother to raise me. I was just 7 years old when my epilepsy started and the doctors are not sure

A Mother’s view of Epilepsy

Jackson Kissel Epilepsy Story Hi, I’m Chris Kissel and this is my son's story Here is a story from my heart.My son Jackson had his first clonic tonic seizure at age 17. Until this time we had no idea he had epilepsy.As a mother, my thoughts and actions drove me to discover why this was happening. As all of you who suffer

My Epilepsy Life Story

Hi, I’m Addison Taylor and this is my epilepsy life story. I have had both Absence Seizures and Grand Mal Seizures for 13 years, When I was 7 years old and in the the 2nd grade I was playing with my friend in the rain one Thursday afternoon before my dad was going to take us to Yogurt Land I suddenly had

My Seizure Experience

Hi! My name is Rebecca Stusser; this is my seizure experience I was an infant when I had my first seizure. I was rushed to the ER, blood tests were taken and a heavy-duty antibiotic was given. I was diagnosed with Meningococcal Meningitis. At 10 months, I had another fever and illness which resulted in an hour-long febrile seizure. My 3rd fever illness

My Epilepsy Journey – Michelle Hackett

Hi! My name is Michelle and I want to share my epilepsy journey story. I have suffered with epilepsy for almost 21 years. I have front left temporal lobe epilepsy. I am currently taking several epilepsy medications a day. My epilepsy has affected my family. Along with my 2 children I lived with my parents until I met my husband 11 years


EpilepGermany -  Sven Michael Story My name is Sven, I'm 30 years old and I'm from Germany. My birth was a real adventure. I was born 6 weeks earlier, had brain hemorrhage, and was deaf. I learned to walk when I was 2 years old, and at 3,  I could already swim. After years of medical treatment, mostly in hospitals, I

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    Few people are actually willing to step up and talk about Epilepsy. We need to make the world aware of the impact Epilepsy has on so many and find a cure. Without a cure, there are far too many people who will never have relief from seizures.

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