Epilepsy Stories

Real epilepsy stories, shared by real people

Epilepsy stories shared by real people in person, through our website, and via our social media pages.

Epilepsy is the fourth most common, serious neurological condition in the world but it impacts each person’s life in a unique and individual way. By sharing your story, you are helping our mission of supporting epilepsy awareness!

Have your own epilepsy stories to share? Scroll below and submit yours now! We will add your epilepsy story on our website and you might be featured on our social media pages as well!

read cassidy megan story

My Epilepsy Journey – Michelle Hackett

Hi! My name is Michelle and I want to share my epilepsy journey story. I have suffered with epilepsy for almost 21 years.I have front left temporal lobe epilepsy. I am currently taking 1500 Keppra twice daily. 500mg Lamictal twice daily. And 20mg Clobazam nightly. My dose can go up to 30/40 mg, for example the night after a seizure or if I am generally

Isabella Stefanoski Epilepsy Story

Hi there  I got diagnosed with absent seizures at the age of 6, then had my first grand mile seizure when I was 17. I had a bit of an incident late April last year , where I had a grand mile seizure and collapsed on the grand whilst I was curling my hair. Fortunate enough  My friend Adam was on face time to


I was in college and working. I was working in the ER as an intermediate level EMT and had focuses in trauma and orthopedics. I also did some triage as well.  I was three weeks away from graduation. I left work on December 2, 2002 to go home for lunch then go to class, but never made it there. My mom had already moved


I Was Diagnosed with Epilepsy, At 17, After An Accident At work, Where I was Working on a Scaffolding, 35ft Up, The Scaffolding Collapsed with me on it, That was 28, Years ago, I Suffered a Head injury, it was a very strange sensation, all I remember was I could hear what I Believed to be water tricking Downwards, it Turned out to be


Epilepgermany, Projecte and cooperation partners Sven - Michael My name is Sven, I'm 30 years old and I'm from Germany. My birth was a real adventure. I was born 6 weeks earlier, had brain hemorrhage and was deaf. I learned to walk when I was 2 years old, with 3 I could already swim. After years of medical treatment, mostly in hospitals, I was


"My name is Ketaki Chitale. I am from Mumbai, India. I was diagnosed with Epilepsy at the age of 10. I apparently did showcase the symptoms before being diagnosed, but the research and medical know-how regarding Epilepsy in India was not as developed in the early 90's, thus the late diagnosis. Epilepsy doesn't discriminate people, but people do. As a child, I was told that I


When Fred Kiserem first convulsed  2012 while at work in Basra, Iraq, he did not think that he would later be diagnosed with epilepsy, a chronic illness that causes unprovoked, recurrent seizures. He did not visit the hospital, neither did he tell his employer in order to secure his job. The seizure attacked again after one month, but luckily it was around the time Kiserem


“I still remember the first time Michelle had a seizure,” said Eunice Cole, Michelle Hernandez’s mother, recalling more than 30 years earlier. “I was scared to death. She was just 11-months-old. I remember when she had another seizure…putting her in my lap and driving to the emergency room.” Cole was told her daughter was having febrile seizures, which are convulsions that can happen during

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Few people are actually willing to step up and talk about Epilepsy. We need to make the world aware of the impact Epilepsy has on so many and find a cure. Without a cure, there are far too many people who will never have relief from seizures.

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