Hi my name is Wendy and as a Epilepsy patient too my Neurologist told me that having a child will be difficult and almost impossible. Before Iris we lose another baby, and I was heartbroken. I remember having this conversation with my husband and he just hugged me and told me something that I will never forget: “ don’t worry I have faith that you will be pregnant again before December “ It happened as a miracle ! Iris came to our lives in Christmas 2012 morning as a beautiful gift.
One year later she started having seizures plus another medical problems like Iris Coloboma in her eyes, she wasn’t able to walk because she used to have escoliosis in her spine. The Doctors didn’t gave us too much hope for her to walk but they wanted to try making the surgery to correct her spine just in case.
After recovering from the anesthesia she stood up on her feet for her first time ! We were amazed of how fast that happened. Even the Surgeon and Doctors were surprised too ! But one day her seizures went out of control and started having what doctors called Estatus Epilepticus that there were one after another…
In the hospital my husband without knowing he filmed a video of the medical team reanimating Iris because her vitals were going awfully down ( that’s the scene that appears in the musical video of Iris song ). But she survived! She have always been so strong…
Few years later she was diagnosed with Cerebral Palsy and Hidrocephalea. She started to go to Metro School where she received specialized therapy for her conditions. Iris loving personality won the hearts of teachers, therapists and the nurses. She loves to give hugs and kisses to them. One of her greatest accomplishments was to learn to walk by herself. Later she started learning how to say some words like : yes, no, mommy, daddy and I love you, not the best pronunciation but you can understand what’s she’s saying.
She received the gift for Disney World and the other parks from the Make a Wish program that one of Iris doctors help us to get it. She had so much fun that it was like a therapy for us all. Seeing her smile and laugh so much it was a blessing for us.
We’re very grateful for all that persons that took a little time to help Iris in one way or another through all this years. And we as parents will keep doing our best to help her and make her life happy. Again thank you all for your support and love 💜💜💜
