Epilepsy is a big part of my life now, I didn’t get diagnosed until after turning twenty-one, not realising that I had been epileptic all my life, but it started out with absence seizures as a child and then tonic clonic ones which I don’t remember having. I used to have these with friends and they not knowing what they were I would be bullied for being weird or they thought I was putting it on. On my 21st birthday I had a very bad tonic clonic seizure which stopped my heart, and I went into cardiac arrest. Luckily my partner was there to do CPR to save my life after that experience I was admitted to hospital for three weeks for them to try and stop my seizures which were uncontrollable at the time, I was having seven seizures a day which you all know how much that wipes you out.
It was hard to come to terms with having epilepsy and for a while I pretended that I didn’t have it and tried to live a normal life of a 21-year-old, going out drinking/partying which was a big mistake taking me back further health wise, I was continually having seizures and my heart stopped a further 4 times. When I got to this point, I didn’t understand why everything was so bad they had realised that my heart was linked to my seizures, and this was going to keep happening to me until I either died or sorted myself out.