Birmingham Children’s Hospital Clinical Nurse Specialist for the Child Epilepsy Surgery Service (CESS) James Lewis

I am the Clinical Nurse Specialist for the Child Epilepsy Surgery Service (CESS) for the Birmingham Children’s Hospital. I have been working in epilepsy for the last 5 years working with children and their families, supporting them through their journey on the surgery pathway. BCH is the largest stand-alone hospital service in the UK and have carried out epilepsy surgery since 2012. The team is solely dedicated to looking after children with complex epilepsy and we provide a service for patients who may be suitable for surgery to improve their epilepsy.

I am also the Vagal Nerve Stimulator (VNS) specialist for the hospital. I support over 100 children/young adults and their families who have a VNS, programming and managing their device to help reduce their seizures.

I helped establish and work with the Paediatric Epilepsy Nurse Network (PENN) who’s aim is to improve and standardize care and information provided to children and their families affected by epilepsy across the West Midlands and beyond.

Previous to this I worked 15 years in paediatric palliative care caring and supporting children/young adults with life limiting conditions who often had epilepsy as part of their condition.

I would like to raise awareness about some of the other treatments for epilepsy that can provide significant improvement in seizures. The prospect of potential surgery can be scary so I would like to provide information that people will find useful and help reduce any anxiety they have around this area.
I would like to help the charity develop it’s support for the younger population effected by epilepsy, as it is a group who can find it particularly difficult, scary and isolating and an area where there is a lack of much needed services and support in the community.