He has bit his tongue the blood is running down his chin.The ambulance comes; you dial in between making sure hes breathing ok, place him on his side. The operator talking to you because he is unconscious, your head is in a whirl. The ambulance crew arrive. Stay and check observations; heart rate high, blood is ok. He is stabilised so we all make the judgement he stays at home in own surroundings. Better that way.
He sleeps for hours, sometimes sick with a really sore head upon waking and he is out of sorts for few days. He is off school; so many people to contact, appointments possibly to cancel and rearrange elsewhere. We are both stuck in the house for days.
These are our 4 walls inside our home having my son with Intractable Epilepsy. Meanwhile all around us carries on, some have seen the ambulance, they know something is wrong with Lewis, oblivious to the seriousness of epilepsy.
He goes to bed tonight runs high risk of SUDEP ( sudden unexplained in Epilepsy )
Maybe he will be fine tonight? No seizures! A big ask…
We are in our own little world, but it’s ok they know us here!
My happy boy, My Enigmatic Son.
Against adversity he fights this horrible condition called Epilepsy.
One day at a time. It’s all we can do.