Allie’s Story

May 21st to May 26th 2026

Fundraising

There are various ways for you to help raise funds towards our mission to suppport epilepsy awareness. We have list some suggestions below and you’re also more than welcome to contact me for more details or advice.

Help Us Raise

Epilepsy Awareness

If you, or a family member or a friend has been affected by epilepsy, please donate however much you can so that we can raise the awareness of epilepsy to the public on a national level.

Become a Volunteer

The charity relies heavily on support from individuals who donate their time voluntarily to work in either of the charity shops or to assist with our fundraising projects and events.

I have drug resistant focal impaired. I was diagnosed when I was around 14, I am turning 20 soon and it still isn’t figured out. I have had an unsuccessful lobectomy and two SEEG’s.

Allie’s Story: My lobectomy.

I had a piece of my left temporal lobe removed in Jan/Feb of 2022. It unfortunately did not work. But, my experience in the hospital was amazing. After the surgery I was able to truly say. I had and survived a brain surgery. No matter how many times I think/say that it amazes me. I think you have to think positively about the surgery.

I’ve been having seizures since I was around 10, just had great difficulty with getting diagnosed. Multiple testing and different hospitals. Took a few years to get diagnosed. Currently, I have a good few days with no seizures, then will go a few days with multiple seizures a day. I occasionally have grand mal. Medication side effects hit me really hard.

Allie (age 19) @lifewithepilepsyy