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My epilepsy story

Jonathan - South Wales, UK

May 21st to May 26th 2026

Fundraising
There are various ways for you to help raise funds towards our mission to suppport epilepsy awareness. We have list some suggestions below and you’re also more than welcome to contact me for more details or advice.
Help Us Raise
Epilepsy Awareness
If you, or a family member or a friend has been affected by epilepsy, please donate however much you can so that we can raise the awareness of epilepsy to the public on a national level.
Become a Volunteer
The charity relies heavily on support from individuals who donate their time voluntarily to work in either of the charity shops or to assist with our fundraising projects and events.

Hi my name is Jonathan I am from South Wales UK and I live at home with my mother, my parents divorced when I was aged 2 and I have a half sister on my father’s side, when my parents divorced my grandparents helped my mother to raise me.

I was just 7 years old when my epilepsy started and the doctors are not sure why it started as there are no other family members that have it, it affected me and my family with schoolwork and found it stressful as I was having about 5-6 seizures a year and the doctors put me on Epilim, the seizures slowly reduced when I was a teenager until they stopped when I was 19 and was able to come off my medication.

Jonathan experiencing an epilepsy seizure, showing the reality of living with the condition
Jonathan with his supportive partner, showing family love and care whilst living with epilepsy

In 2013 I met my girlfriend Leeanne and we got engaged the Following year, I went 20 years without having any seizures and then in 2020 my epilepsy returned and I had a grand mal seizure in front of Leeanne while I was eating and if it wasn’t for her quick thinking I would have choked on what I was eating, I went to the hospital after my 2nd seizure and they put me on Keppra which I am still on but the maximum dosage I have had 2 further seizures which have now stopped but I still suffer with auras 2-3 times a week.

In 2021 I done a fitness challenge in my local gym in South Wales to help raise money for the charity. There should be more awareness raised by breaking the stigma in all gyms and it should be spoke about more on television and social media.

Jonathan working out on rowing machine at gym with Epilepsy Action supporter, showing active lifestyle with epilepsy
Jonathan Evans at the gym, sharing his epilepsy story and fitness journey with social media followers

Other Stories

The Voice For Epilepsy charity logo with purple awareness ribbon
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