Epilepsy Stories
Real epilepsy stories, shared by real people
Below are the epilepsy stories very kindly submitted to our website and our social media pages by people living with the condition and the families and friends caring for them.
Have your own epilepsy stories to share?
Epilepsy is the fourth most common, serious neurological condition in the world but it impacts each person’s life in a unique and individual way. By sharing your story, you are helping our mission of supporting epilepsy awareness!
 Scroll below to submit a post. We will add your epilepsy story on our website and you might be featured on our social media pages as well!
Beth Yvonne’s Story
I have Idiopathic generalised combined epilepsy I suffer with tonic clonic,absence and partial awareness seizures. I was diagnosed 10 years ago but have had seizures from age 2, I went undiagnosed until I had a 6 minute seizure at college in 2014. I had to catch up on course work at college and very nearly missed out on getting
Anna Thornton’s Story
I live with nocturnal epilpesy as all my generalised seizure have arisen in sleep. I have begun to experience myoclonic symptoms which are being investigated. These are beginning to affect my sleep. My seizures I believe begun due to stress in my life and the sheer emotional pain. I had my first child in november 2017, I
Baby Mabel’s Story
Mabel was 9 weeks old when she had a spontaneous seizure, whilst we were out at soft play. It was overwhelming seeing her tiny body seize. An ambulance was called and Mabel was taken to hospital, where she proceeded to have further cluster seizures. After copious tests over several days, consisting of; a CT head, lumbar puncture, MRI,
Me and Epilepsy
Stress triggered my seizures Hello, my name is James and I’m 27 years old. I was diagnosed with epilepsy in March 2015 after a built up of stress while at college. My triggers are stress, lack of sleep and tiredness. Through having a wonderful support network of friends and family, my neurologist and the right medication I can live a life that
Kathleen’s Story
Seizures in elderly people My mum Kathleen was diagnosed with age-related epilepsy in her late seventies. When she had her first seizure, it was a huge shock for her and the rest of the family as she'd always been healthy. Although her seizures were mainly tonic-clonic, she did occasionally have absence seizures and would stare into the distance silently.
Toby Hutchinson
Young epilepsy story: Toby Hello and Thank you for taking the time to read this. I have a question for you….. If someone was to ask you what you were doing 5 years ago on 30th March 2018 which was also Good Friday, I'm sure you would say "I can't remember what I did this time last week let alone this time 5
My Epilepsy Story
I’ve always done well in school; it was one of the things I was most proud of. However, this was not the case when it came to French. It was the subject that stressed me out most and I absolutely dreaded it. On one day during a French lesson, I got this feeling in my stomach, I’d got this feeling many times before.
In My Right Mind
I had complex partial and grand mal seizures in my childhood and in my young adult years. I had many days when I would have several seizures in one day and would need to sleep after having a seizure. The seizure medications that I took never completely controlled my seizures. I had learning difficulties as a result of having epilepsy and taking up
