Epilepsy Stories

Real epilepsy stories, shared by real people

Below are the epilepsy stories very kindly submitted to our website and our social media pages by people living with the condition and the families and friends caring for them.

Have your own epilepsy stories to share?

Epilepsy is the fourth most common, serious neurological condition in the world but it impacts each person’s life in a unique and individual way. By sharing your story, you are helping our mission of supporting epilepsy awareness!

 Scroll below to submit a post. We will add your epilepsy story on our website and you might be featured on our social media pages as well!

Cassidy Megan founder of Purple Day - read her story


I'm Tracey Perry, this is my epilepsy carer experience My daughter had her first seizure just after her 11th birthday in July. Luckily, I was a trained first aider and knew what to do. I called an ambulance and at Heartlands Hospital. They diagnosed her as having a febrile convulsion due to having a cold. I questioned this due to the fact that she hadn’t


I'm Lorraine, this is my life as an epileptic I remember the day very well when I had my first epileptic seizure at 13 years of age. I was out with my friends at a Musical Youth concert back in the early 1980’s. I returned home and went to sleep after an exhausting and exciting day.  I woke up and did not feel well,

What it really feels like to have a child with epilepsy

What it feels like…to have a Child with Epilepsy I really knew nothing of epilepsy prior to having my son Lewis 18 years ago.Having a child with epilepsy of the serious form which is uncontrolled is one of the most ambiguous neurological illnesses to deal with. You feel helpless. You see your child suffering every day and you cannot take it away

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    Few people are actually willing to step up and talk about Epilepsy. We need to make the world aware of the impact Epilepsy has on so many and find a cure. Without a cure, there are far too many people who will never have relief from seizures.

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