My name is Kasam Parkar and, I am a 49-year-old living with Epilepsy. I suffered my first seizure at the age of 23 and went undiagnosed in hospital for nearly 2 weeks. Normal life now consists of hospital visits, ambulance rides, recovery from injuries – broken nose, fractured shoulder, cuts forehead, loss of memory for over 5 years.
I have also felt distanced from the life I formerly enjoyed. After many years, new hospitals, new doctors, new medications, altering life habits and an overwhelming amount of support from my family and close friends, my seizures are currently controlled by medication, my seizures can be erratic and occasions I have suffer clusters which exhorts me for the rest of the day.